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Fight against cystic fibrosis: "I am standing", tells a patient

2020-09-14T12:53:01.080Z


Blogger Sabrina Perquis recounts her battle with the disease in a book.On his answering machine, piano trills pick you up. Sabrina Perquis looks like them. At 40, the Secret Story candidate who had revealed in 2011 "to live with the lungs of another" goes for it. The cyst? Yes and so ? This could have been the title of the autobiography that the blogger and radio host has just released, and in which she recounts “her fight against cystic fibrosis”. This disease was


On his answering machine, piano trills pick you up.

Sabrina Perquis looks like them.

At 40, the Secret Story candidate who had revealed in 2011 "to live with the lungs of another" goes for it.

The cyst?

Yes and so ?

This could have been the title of the autobiography that the blogger and radio host has just released, and in which she recounts “her fight against cystic fibrosis”.

This disease was supposed to put her down as a child, she resists it again and again, and she is proud of it.

"I'm on my feet," she said, gazing in awe at the recent breakthroughs in therapy.

“It's exceptional what is happening.

I would have liked so much to enjoy it, but it's not for transplant recipients like me, it's that I am an old woman!

"

His son Loès, “his booster”

This mucus that still lurks inside her, Sabrina has already taken so many steps, from triple daily physiotherapy sessions, through antibiotic cures, to the transplant of both lungs.

So she can have a little fun with it.

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These brand new lungs, she has had them for thirteen years.

The anti-rejection treatments that she now takes for life have deprived her of having a second child, damaging her kidneys, but "I no longer have physiotherapy, aerosols, I only swallow 15 meds. per day instead of 30 to 40, it's always better than before ”she says.

She is like that Sabrina, cash and modest just like her story

(Editor's note: "I had to die at 7", Hugo Doc, 18 euros)

, of course peppered with superb victories such as the birth of her son Loès, "his booster" .

But there are also those hurtful remarks that are so well known to those with invisible disabilities.

In the rank of indecent, the palm goes to this principal who launches to her distraught mother: “Quite frankly, I don't know what we are going to do with your daughter, at least she is pretty in the surroundings.

»Later, once her esthetics CAP in hand, we meet in the clumsy department, this client of the UV center where she works.

He asks, "the usual blonde," Sabrina?

"I don't know, the anorexic girl".

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Said blonde, just a mother but at worst, emaciated by illness and trembling with fever, will put him sharply in his place.

There is no doubt that cystic fibrosis is a disease that requires you to be strong.

“That the public is so attached to the figure of Grégory Lemarchal, does not surprise me, notes Sabrina.

Grégory Lemarchal showed great courage.

The brutality of his disappearance marked us all, I myself did not want to believe it.

"

Source: leparis

All life articles on 2020-09-14

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