“When the diagnosis came in October 2022 after an electromyogram, it was a disaster,” remembers Jean-Pierre Loriot, 74 years old.
Four people had died of Charcot's disease in the street, I knew what awaited us.
My wife died at age 66 last June.
It's a misfortune..." Six months after his death, the retiree is lost, inconsolable.
And above all he would like to know why in his street, that of the Château d'eau in Saint-Vaast-en-Chaussée (Somme), five people - including four women - were victims of this terrible disease which causes progressive paralysis of the muscles.
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Little by little, the patient finds himself trapped in his body.
Slow, death occurs in less than three years.
Because, to date, there is no effective treatment.
“My husband could no longer stand, could no longer blow his nose or eat.
I felt helpless.
Without my children and my grandchildren, I would have thrown myself under a truck,” confides Françoise Gamain, 77, in tears.
Employee of a tire company, her husband, Pierre, died in 2009, at the age of 67.
He was the first to succumb to the disease.
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