"Stop the experiments on our children": parents in an unprecedented protest to introduce a breakthrough treatment to the medicine basket. About 80 parents of children with the severe and fatal genetic disease Duchenne are threatening to abandon treatment at the Schneider Children's Hospital in Petah Tikva.
The parents' claims that Prof. Yoram Nevo, one of the most senior pediatric neurologists in Israel, supports and influences the general health insurance fund in its resolute opposition to the inclusion of a modern and expensive genetic drug in the drug basket.