Clément Chauvin, 17, suffers from an extremely rare genetic disease, combining neuropathy and encephalopathy. During Covid, the teenager's care was interrupted.
At the beginning of January, the Chauvins received a letter informing them that their son had been removed from the medical-educational support system (DAME, formerly IME) in Falaise. The Chauvin family hopes to meet ARS officials to restart Clément's follow-up and obtain a little respite from their daily lives.