Jérôme Lejeune died in the early morning of Easter, just 30 years ago, on April 3, 1994. He was preparing to receive communion, on this feast which represents, for the Christian that he was, the victory of life over death.

For his epitaph he was awarded these four letters, engraved in gold on the modest granite tombstone: “NIKE’ – not the sports brand of course, but the Greek goddess of victory. The Foundation that bears his name is raising funds in the hope of one day discovering a treatment for this disease.