It is the awakenings that are the most painful.
When her ankles tighten, when the soles of her feet feel tight, when the fingertips are electrified.
Twenty-five years of triple therapy have not left the body or the mind unscathed.
Beatrice, 59 years old and with big green eyes, has yet finished with painkillers and antidepressants swallowed by platelets, to become a shadow of herself.
Instead, two doses of weed help him get into a tolerable daily life each morning.
“Cannabis keeps me upright and allows me to move forward,” summarizes the former commercial.
Nestled in her Angevin countryside, Béatrice knows that she is doing it completely illegally.
“I risk a fine or more.
I am guilty of being sick, ”she says, a voice as dynamic as it is confident.
Because today, medical cannabis has become his hobbyhorse.
"I am only waiting for that", she says, experience of neighboring countries as an example.
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Like this mother of a family, there are thousands of patients, with cancer, multiple sclerosis, neuropathy or like her, HIV, to hope for therapeutic recognition of the famous controversial green leaves.
Debated for years, voted in the fall of 2019, announced in September, then in January ... the start of experimentation, in France, with therapeutic cannabis on 3,000 patients should still be postponed.
The decree authorizing it has still not been published and its budget is currently… 0 euros!
An unprecedented fact, doctors (including its president) sitting on the Scientific Committee set up by the Medicines Agency (ANSM) are stepping up to the plate in a forum that we are unveiling.
Supported by learned societies and patient associations, they put down their concerns and ask the government to respect its commitment.
A special address to Olivier Véran, former member of Parliament fervent defender of experimentation, who became the Minister of Health.
The impact of Covid-19
His ministry, which we have joined, defends itself from any wait-and-see attitude and pleads the impact of Covid-19 on the medical cannabis file.
"The experiment relating to (its) use will begin in 2021", we are assured, without specifying the date.
"It represents an important issue and responds to a strong expectation for the management of pain and spasticity", continues rue de Ségur.
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“Since the announcement of the experiment, I have the
distrust
warnings
on and I'm obviously right.
Each postponement insults the sick, ”breathes Béatrice.
And do not tell her that she smokes, at the risk of being immediately corrected: "I inhale using a vaporizer!"
“Despite the kidney transplant, fatigue, muscle atrophy, the fifty year old continues on her way.
Already, by forcing himself to his daily kilometer to walk Fakir, the black cocker spaniel.
And by freeing the voice of the sick: post on blogs or testify to our newspaper.
"I've been fighting for thirty years, I'm not going to let go now.
"