Hundreds of patients and their families will demonstrate in zoom for the basket committee to introduce the drug Tricapta • 12-year-old Adi Sierra from Nahariya: "Wants to be a grandmother"
Adi Sierra.
"I want to reach old age"
About 500 patients with cystic fibrosis and their families have petitioned the Medicines Basket Committee, which is convening today to request that TRIKAFTA be included in its budget.
"Cystic fibrosis (CF) patients are at risk for coronary heart disease and have been confined to their homes for many months to protect their health," they wrote.
The petition was written following the exposure in "Israel Today" in August that the corona plague is also reaching struggles and discussions about adding new drugs to the basket.
This is due to the CF Association's requirement from the Ministry of Health to include the groundbreaking and expensive drug, Tricapta, in the drug basket.
Tricapta, which has been approved for patients from the age of 12, results in a dramatic improvement in lung function and is expected to prolong patients' lives by up to 35 years.
Today, CF patients will hold their first demonstration of their kind this year in Zoom, as part of the drug basket struggles.
Hundreds of patients and their families are preparing to participate in the demonstration.
Adi Shimon, 12, from Haifa, told Israel Today that she intends to participate in the demonstration this morning, and that she says "cystic fibrosis is a serious illness that will accompany me all my life and the new drug looks like a miracle that allows me to imagine a future."
Adi Sierra, 12, from Nahariya, told "Israel Today" that "unlike my peers, there are quite a few things I can not do, and it is a disease that anyone who does not live in will not be able to understand. "I want to reach old age and have the privilege of being a grandmother."
