"To date, about one million and 200 thousand people are affected by about 8 thousand different rare diseases. Dedicated initiatives help to bring attention to this world. A world made up of people and their families, who ask for more support, of course, even more attention. From everyone, primarily politics, especially after an extremely complicated year like that of the pandemic, where 'rare patients' have been heavily impacted by the health emergency, between isolation and limitations in going to hospitals and other complications of a different nature ". The Minister for Disability Erika Stefani writes in a message sent on the occasion of the online event "Single Text on Rare Diseases, from the House to the Senate"organized by the Rare Diseases Intergroup together with the Rare Diseases Alliance and in partnership with the Rare Diseases Observatory.
"So let the Day be an opportunity for a new beginning, to give support to areas of fragility that require care, protection, listening and sharing" concludes Stefani, also referring to the arrival in the Chamber of the Consolidated Law on Diseases Rare. (HANDLE).