"My personal experience dates back to these months: I had an operation for two and a half months, I had a chondrosarcoma in my femur. This tumor was removed by cutting 23 centimeters of the femur. Today there is a titanium prosthesis in its place. ".
Speaking, on the occasion of the presentation of an awareness campaign on sarcomas, is the former president of the Chamber and deputy Laura Boldrini.
"I discovered this disease by chance: I had pain from the buttock to the groin that reached the thigh but I thought it was the sciatic nerve - she pointed out -. A friend led me to visit an orthopedist, who advised me to do an MRI of the pelvis. A mass emerged. The radiologist referred me to a specialist. I did a Total Body, the Pet. Suddenly, I directly experienced the existence of words that I had only heard about the media. of information ". With the diagnosis of cancer "we enter another world", adds Boldrini. "It is a journey of knowledge - he stresses - also of human relationships. You can see what it means to have impossible medical rhythms and personnel dedicated to restoring dignity to people.The strength of sick people is also experienced. It is also an inner journey, one relates to pain, fear and uncertainty. A way to deal with yourself ".
"I feel the duty - notes the former Speaker of the Chamber - not to avoid raising awareness on sarcomas, rare cancers, and also to try to do my part, as much as possible, to help unblock the situation of the national cancer network. rare, which still does not work fully today.
I will try to help out within my prerogatives to be able to understand how to unlock it.
The European one they tell me is working well, the Italian one is blocked due to obstacles that are not yet very clear concerning the Ministry of Health and Agenas, the national agency for regional health services, but also the territories and structures themselves.
It will be necessary to understand how to facilitate this path.
It is difficult to arrive at a diagnosis, it is true that today it is necessary to move to go for treatment elsewhere and finding information is not easy.
This must be overcome: on my part, the commitment to seek solutions for the benefit of all and all ".
The campaign starts
"It is important to lend a hand, to pass on one's experience and hope". It is with the energy and empathy that the words of the testimonial Giacomo Perini, Paralympic rowing champion, Knight for Merit of the Republic, hit at the age of 18 by an osteosarcoma of the leg, transmit a campaign to raise awareness on sarcomas, tumors rare and potentially aggressive, affecting the supporting tissues of the body. In Italy 3600 people face them every year. It is important to network against these neoplasms, which are difficult to diagnose due to non-specific symptoms and of which there are about 100 different types. In July, the international month of sarcoma, the Trust Paola Gonzato - Rete Sarcoma Onlus launches the campaign "Let's make a network against sarcomas". With the aim that patients'discriminated by the rarity and complexity of the disease can obtain answers, first of all through the complete implementation of the National Rare Tumors Network, established in 2017. Support for the campaign comes with the support of the Italian Rowing Federation chaired by the Olympic champion Giuseppe Abbagnale, who lost for an osteosarcoma the young champion Filippo Mondelli. For a month, videos and infographics will be disseminated on social networks. You can also use a filter for your Facebook profile. "This campaign - adds Giacomo Perin i - was born to spread a culture about sarcomas, to know the stories of patients who have made it, to combine the experience of doctors and research". "Information helps to orientate - points out Ornella Gonzato,trust president Paola Gonzato-Rete Sarcoma Onlus - to reduce fear, to immediately contact reference centers. The campaign aims to highlight that rare does not only mean: in the area of sarcomas, a community of Associations, researchers and Institutions is growing and are committed to providing answers to patients. But the National Rare Cancer Network must be activated immediately: it is the most concrete response that patients are waiting for "." The National Rare Cancer Network - concludes Paolo Casali, Coordinator for Sarcomas in the Euracan European Network - will also be able to limit health migration, because the patient will move less, while his clinical information will move more ".area of sarcomas a community of Associations, researchers and Institutions is growing and are committed to providing answers to patients. But the National Rare Cancer Network must be activated immediately: it is the most concrete response that patients are waiting for "." The National Rare Cancer Network - concludes Paolo Casali, Coordinator for Sarcomas in the Euracan European Network - will also be able to limit health migration, because the patient will move less, while his clinical information will move more ".area of sarcomas a community of Associations, researchers and Institutions is growing and are committed to providing answers to patients. But the National Rare Cancer Network must be activated immediately: it is the most concrete response that patients are waiting for "." The National Rare Cancer Network - concludes Paolo Casali, Coordinator for Sarcomas in the Euracan European Network - will also be able to limit health migration, because the patient will move less, while his clinical information will move more ".Coordinator for Sarcomas in the Euracan European Network - he will also be able to limit health migration, because the patient will move less, while his clinical information will move more ".Coordinator for Sarcomas in the Euracan European Network - he will also be able to limit health migration, because the patient will move less, while his clinical information will move more ".