Penelope Canonico
09/01/2021 12:11
Clarín.com
Society
Updated 09/01/2021 12:11
Justice keeps coming and going with the scandalous
vip vaccination
.
When we learned that other people received doses jumping the established order of priority, with dubious justification, the heartbreaking request of a mother exhausted all possible instances to
succeed
in registering his daughter with Down syndrome,
who had undergone heart surgery at the age of 3 and a half,
on the official schedule
.
“I want to share, denounce and
be the voice of so many innocents who
paid with their lives,
died of Covid19 for so much injustice.
Damn bureaucracy, in this upside-down world a badge or a position is worth more than grandparents and the disabled.
They should have been the first, but in this corrupt country,
our children were left for last.
I am the proud mother of Lorena Paola Riva, who was barely 40 years old and had Down syndrome ”, Gloria Beatriz Alarcón (65) introduces herself in an open letter, which she also released in a video.
Loli, as she was baptized in the Berazategui neighborhood, also had hypothyroidism.
Owner of an active and stimulated personality, she
defended her rights
.
Loli and her mother, Gloria Beatriz Alarcón.
“She was very loved by everyone around her.
He had been skating since he was 11 years old, was part of the integrated theater cast and competed in Buenos Aires tournaments.
Also, he took gastronomy courses because
his dream was to be a chef
”, remembers his mother, who still feels her body marked by his hugs.
A labyrinth of mishaps
Without success, Loli's mother
went through different vaccinations
and even tried to register her in the applications, claiming any other comorbidity because
the "disability" option was not enabled in any of them
.
“I always received the same refusal.
They told me that the turn was going to arrive by mail and they couldn't do anything.
I felt that no one was listening to my claim, ”laments Beatriz in dialogue with
Clarín
.
It is that, until the middle of May,
people with disabilities
were not part of any of the seven target groups
to be vaccinated against Covid-19.
Studies carried out by the International Society for Research on Trisomy 21 (T21RS), showed that this group, particularly those over 40 years of age,
experience a substantial increase in mortality or serious complications
after infection with SARS-Cov-2.
Other scientific evidence also supported that
the coronavirus is
three times more deadly in adults with Down syndrome.
By the time Loli began to qualify as a priority risk group to receive the Covid vaccine, Beatriz's greatest fear had already transferred to the plane of reality.
Loli contracted the disease
.
He started with a cold followed by a cough pattern that alarmed his family.
Lorena Paola Riva was 40 years old.
On May 22, he was saturating well, but on May 25
his health condition worsened due to bilateral pneumonia.
They transferred her to the Evita Pueblo Hospital in Berazategui in an ambulance.
“I was shivering with cold and had several lines of fever.
Once she was admitted
they put her in tubes and she never woke up again
”, Beatriz's tone is interrupted, broken by the pain that comes from her throat until it becomes a source of tears.
An insurmountable delay
On May 26 she was transferred to the intensive care area
from Carriquiriborde Hospital in Temperley, which is owned by IOMA.
16 days of agony.
Clinging to the hope of a miracle and waiting for every medical part, Beatriz no longer lived.
June 6
was a key date.
The notification with the
confirmed shift
for Loli's Covid vaccination
appeared on his mobile screen
, which he had waited so many months ago.
"How ironic.
How much anger and pain I felt at that moment.
It seemed loaded to me, a lack of respect.
It was already late, my daughter was saying goodbye to this life ”, he unloads himself and wonders why people with disabilities were
not given room in time
.
He confirms that his fight against disability is forever.
"Loli was so great that she endured all that time in hospital to get used to the fact that I would never be able to see her at home again," he reflects after a silence.
Loli dreamed of being a chef.
“On June 10 she died alone in the hospital from this damn virus.
I hugged her, and took her hands.
His legs were cold.
I opened his eyes, he no longer had life.
I whispered to my angel to fly high and be free.
Loli moved from home, she moved to my heart ”, describes Beatriz in the midst of a terrible emptiness, and she is grateful for having had the blessing of being her mother.
“
I am angry with this society because they did not register the disabled.
That is my pain.
I say it to whoever is responsible because they have another innocent person on their backs, ”he says with the hope that the word disability will acquire greater importance.
ACE
Look also
"We started to cry": the emotion and relief in the families of the first children vaccinated against Covid
They launch a cartoon contest to make the issue of disability visible