Sitting in her wheelchair, Gwen scans her computer screen.
In a few blinks, he formulates a sentence: "It's an incredible invention, it allows me to remain independent in a lot of areas", explains the robotic voice of the computer, which has become his own for eighteen months now. .
Since 2011, the Belgian has suffered from amyotrophic lateral sclerosis, also called Charcot's disease.
This neurodegenerative disease made him progressively quadriplegic.
His only way to communicate: his eye-controlled PC.
By detecting the movements of her pupil, the machine allows Gwen to dictate sentences then repeated by the computer, to write emails, to use her laptop, to manage the TV remotely... And even to write a book .
Read also Gwenaël's valiant fight against Charcot's disease: "I have a shorter life expectancy, but I have hope"
In "Charcot or life, you have to choose" (
L'harmattan edition, 19.5 euros)
, he recounts his daily life and his fight against illness.
“I find that you don't see many people in wheelchairs and in public places.
People who are ill or disabled must dare to leave their homes, to face people's gaze,” explains Gwen.
“Life is not over: look at me.
I am quadriplegic, I feed by a tube, my lung capacity is more than limited and yet I am happy.
Am I crazy?
My neurologist told me not,” he concludes with the optimism and humor that characterizes him.
A report to see in the video at the top of the article.
