A campaign to raise awareness in Italy of the difficulties that a person suffering from a rare disease must face: #let us unite our forces is the appeal that will cover the peninsula.
The initiative is promoted throughout the month of February, by UNIAMO - the Italian Federation of Rare Diseases, on the occasion of the 16th edition of the Rare Disease Day. Together with out-of-home awareness, with the branding of buses, trams and subways in 6 Italian cities, as many awareness events will be organized with the presence of the highest political and institutional offices.
The social media campaign will involve influencers, people with rare diseases, associations and citizens, with coordinated graphics and focal moments on telling the "stories" of patients.
The video and the podcast,
The issues - explains a note - addressed during the month of February are those resulting from the working tables promoted by the Federation, from the presentation of MonitoRare - the Report on the condition of people with rare diseases - up to the general status of rare diseases.
Condensed in the "ephemeris", UNIAMO's publications should guide politics and institutions in the coming months.
"This year's campaign will touch various regions, because they are the fundamental institutions for taking care of people with rare diseases", says the president of UNIAMO, Annalisa Scopinaro.
"It is necessary to ground the great system built in recent years, making patients and their families feel less alone and 'taken by the hand' from the moment the first symptoms appear",
The campaign will be inaugurated on 1 February at the Ministry of Health, with the launch of the video and podcast, in the presence of Minister Schillaci.
Events will follow in Pescara (3 February), Florence (6), Rome (15), Naples (16), Genoa (17), Bari (20) and then, finally, Rome again (28), in the Senate, for the closing meeting, the telling of patient stories and the final appeal to politics.
You can participate in the campaign in various ways, on https://uniamo.org/uniamoleforze/ the modalities.
