“The nurses are nice, is that where you eat the bad pasta?”
» Marie smiles, remembering the question asked by her 8-year-old daughter, Blanche, when she was visiting the hospital to take a genetic test.
Or rather a “cenetic” test, as the little girl had written on a paper where she had listed her “boos”.
Marie knows these premises well, she is infused there every month.
Because she suffers from a so-called “rare” genetic vascular disease, that of Rendu-Osler, diagnosed after more than thirty years of “medical wandering”.
From now on, there is “a chance in two” that his daughter will be affected too.
“Psychologically, it’s complicated because we inevitably feel guilty,” confides the 51-year-old from Bordeaux, supported daily by her husband, Nicolas.
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