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Treatment for cystic fibrosis: children of hope

2024-03-16T06:06:14.437Z

Highlights: Treatment for cystic fibrosis: children of hope. In recent months, children aged 2 to 5 can finally receive a revolutionary drug. Some are getting ready to test it, others are waiting to see if it works. Otto has already had four intestinal obstructions, the fault of the abnormally thickened mucus which jams the body's machinery, blocking his digestive tract, and the lungs, in the long term. The rare and incurable genetic disease gives few symptoms at this age.


In recent months, children aged 2 to 5 can finally receive a revolutionary drug. Some are getting ready to test it, others


Caroline points to the entrance to the hallway.

This is where you need to take off your shoes.

“Do you have any masks?

», Checks the 35-year-old mother, almost apologetically.

“It’s one of the little details to enter our home…” On the 1st floor of his Parisian apartment in the 19th arrondissement, the parquet floor is perfectly vacuumed.

Little socks trample him at full speed.

Otto, her 2-year-old son, with a naughty look behind his brown locks, rushes in with a bang and hands us a fire truck.

His good nature ignores adult rules, hygiene, distance, this health bubble to protect his lungs and his stomach weakened by cystic fibrosis.

Even though the rare and incurable genetic disease gives few symptoms at this age, Otto has already had four intestinal obstructions, the fault of the abnormally thickened mucus which jams the body's machinery, blocking his digestive tract, and the lungs, in the long term.

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Source: leparis

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