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Shock diagnosis for maxima (8): This is how the little one lives with her incurable disease

2020-09-25T21:18:24.144Z


The diagnosis hit the family like a shock: The small Maxima (8) suffers from type 1 diabetes, a chronic disease that is considered incurable. But the little one is strong.


The diagnosis hit the family like a shock: The small Maxima (8) suffers from type 1 diabetes, a chronic disease that is considered incurable.

But the little one is strong.

  • Maxima (8) from the Erding district has diabetes.

  • The diagnosis came as a shock to the family.

  • But Maxima bravely faces the incurable disease.

Maria Thalheim

- The

diagnosis of

a

chronic illness

is usually difficult to bear for those affected, especially when it is about their own

child

.

Christine Scharf and her daughter

Maxima

have recently been living with

type 1 diabetes.

And better than expected.

Maxima (8) suffers from type 1 diabetes: "Had pain all over the body"

If many people are now complaining about

Corona

, the Scharf family in Maria Thalheim

began a

state of emergency

a month before the

lockdown

.

Christine Scharf suddenly noticed

extreme thirst

in her eight-year-old daughter in February

.

“She drank liters of water and had to go out several times at night,” says the 49-year-old.

"The next day at school I had such

pain

all over my body that I could hardly get up," says her cheerful daughter.

She was picked up from class early and

after the

blood sample was taken, she received

the alarming message

from the

family doctor

: "The

blood sugar level

, which is normally 100, had risen to 800 at maxima."

+

With the sensor, the blood sugar level can be continuously monitored.

© Gerda Gebel

Immediately we went to the Altötting

children's hospital

.

“I was in the

intensive care unit

there for

three days

, and I felt like I was chained with all the

tubes,

” says the little patient.

After moving to the normal ward, the mother and daughter began

training

for

days

on how to deal with the

disease.

I just cried the first night, and only after a few days did I become sure that it would be possible,” says mother Christine.

"I was

doing very well

in the

hospital,

" insists

Maxima

, "someone kept asking what I wanted to eat, and there was even schnitzel with french fries."

Type 1 diabetes in children: Maxima (8) quickly got used to constant blood glucose monitoring

After two weeks in the

hospital

, the student immediately went back to class, her friends had already missed her very much.

In addition to the

satchel

, it was now a

matter of

taking other

equipment

with you.

The eight-year-old always has her

diabetic

ID

with her

in a

bum bag

,

along with several pieces of

glucose

and a

measuring device

, similar to a

smartphone.

To measure the

blood sugar level

, she holds it up to a

circular sensor

that is glued to the upper arm.

This avoids the running

prick

in the finger.

The sensor needs to be changed to the other arm every two weeks.

This is not so pleasant, the student admits, since the

sensor is

stabbed in the arm

with a small

needle

.

The needle is then withdrawn into the

application

aid, only a thin thread remains in the arm under the "button" that is visible on the outside and

measures

the

blood sugar

.

Maxima proudly shows the colorful stickers with which she can decorate the sensor; what she likes best is the sticker with the little dog.

Already at the Altötting

hospital

, the little patient received a backpack with a

giraffe pattern, which

also includes a

diabetic ID card

and

glucose

, as well as a small juice and an

insulin syringe.

I always take it with me when I go to a friend's house,” says Maxima.

Maxima (8) is terminally ill: the emergency oil box is deposited in the school

Mama Christine informed the teacher about the situation in advance and handed in an

emergency box

at the school

.

"I am the only child with

diabetes

in my school," reports daughter Maxima.

During the training courses at the hospital, she also learned how to

inject

insulin,

which she now routinely injects into her stomach.

“She wanted to do the spraying herself right away, which is also practical when she's on the go,” explains Christine Scharf.

Her daughter also confidently administers

the evening injection with the

long-term insulin

in her thigh, while mom only controls the amount drawn up.

+

The insulin syringe has become routine for Maxima Scharf.

© Gerda Gebel

“Poor child, now she's not allowed to eat anything sweet”, Maxima is often regretted, but that's not true.

It would

not

have been necessary to

change the food

, her daughter can eat everything as before, explains Mama Christine.

Even eating is not a problem, just something thoughtful walk the

food intake

vonstatten.

Before eating, the

bread units (BS) are

determined

using a table

, and the

injection unit is based on this

.

Three meals will also injected three times in

between meals

once or twice in addition.

Type 1 diabetes so far incurable: Maxima (8) is well looked after

For documentation purposes, a precise

blood sugar diary is kept

, with entries on the daily

injections

, which is then also presented at the medical check-up appointments.

“Even in the hospital, we were very well received by our

diabetologist,

Dr.

Sydlik and our diabetes advisor Ms. Jetzlsperger, whom we can contact at any time with questions or problems.

That gives me a lot of security, ”says Christine Scharf, who is now experiencing the situation relatively relaxed.

No noticeable restrictions in everyday life: Maxima (8) is brave with her type 1 diabetes

Patient Maxima

has also come to

terms

with the

illness

very sensibly

.

She is happy that she can continue to do her sporting activities such as

kickboxing

at KBV Erding, skiing and

unicycling

.

Sport

is strongly recommended as it

can

stabilize blood sugar levels

.

Activities with the "weasel children" in the horticultural association or meeting friends are also no problem.

“I spoke to the coaches and parents of my schoolmates, they all know exactly.

It works great, ”says the mother happily.

The two only want to wait a little longer to spend the night with friends.

Step by step, mother and daughter are now expanding the radius of action, going to the cinema with popcorn - with splash beforehand - or a visit to Legoland already worked out well.

The

holiday in Gran Canaria planned

for the

summer

holidays had to be canceled due to the

corona

, but Maxima has a solution for this as well: "Then we'll go away twice next year," explains the sporty girl with a smile.

Adrian from the Dachau district also suffers from type 1 diabetes. He was only 15 when he was diagnosed.

It was a day when everything changed - and which he almost did not survive.

Source: merkur

All news articles on 2020-09-25

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