Campaign to save Bianca in Paraguay faces new obstacle 7:31
(CNN Spanish) ––
Bianca, the one-year and 11-month-old girl who moved Paraguay with her parents' request to raise US $ 2 million, received this Wednesday the drug to treat her spinal muscular atrophy.
This was reported by the country's Ministry of Health.
According to the entity, the procedure with the drug zolgensma was performed for the first time in a public service in the country, in a pediatric hospital in the city of San Lorenzo.
In a post on Instagram, Bianca's parents thanked the authorities, doctors and the public.
Last year, they launched a campaign to raise funds and access the expensive drug.
The effort went viral on social media.
According to the Paraguayan Ministry of Health, the spinal muscular atrophy from which Bianca suffers is a genetic disease that attacks the cells that communicate with the voluntary and involuntary muscles.
Consequently, and depending on the severity of the case, it can cause problems in the mobility of the body.
Also to swallow food and breathe.
Zolgensma, which is manufactured by a Novartis subsidiary, does not cure the disease, the entity explained.
Although it can modify the process of the condition, according to the ministry.
According to the United States Food and Drug Administration, this medicine should be applied only once and before the patient is two years old.
The deadline for Bianca was February 4.
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Sanie López-Garelli contributed to this report.
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