Xiao Yuen, a five-year-old girl with congenital bile duct occlusion, underwent liver and enterotomy at Queen Mary Hospital in December 2017. Her heartbeat and breathing stopped for a while, and she needed long-term hospitalization for observation.
His parents pointed out on their Facebook page today (30th) that Xiao Yuen passed away peacefully last night (29th) after fighting for more than five years, and described that "I finally graduated last night and returned to my heavenly home."
Their parents said, Xiao Yuen's liver continued to deteriorate more than a month ago, "it made her cry in pain, and the pain was to the point of piercing her lungs. Even lomaphine could not effectively relieve the pain, and she would wake up in pain when she was sleeping." Suddenly the eyes can look at the mother and the sound responds.
At dusk, her parents kissed her to say goodbye, "Tell her not to give up on us, we will love her forever and never forget her, and go to another world to enjoy happiness."
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Xiao Yuen's parents said on their Facebook page "Xiao Yuen Care and Prayer Group" today that Xiao Yuen's liver continued to deteriorate for more than a month, and her blood coagulation function was poor. She had a high fever all day long, and until recently she had completely lost her liver function. She had severe ascites, squeezed other internal organs, and had stomach bleeding, which made her cry in pain.
The parents also pointed out that Xiao Yuen has been in a state of death for the past few days, "with dull eyes and a coma like a vegetative state".
Until yesterday, she "returned to the light". After her family said goodbye to Xiao Yuen, tears flowed from the corners of her eyes, and her heartbeat slowly dropped until it stopped.
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Yuen’s parents also recalled that in Yuen’s short life of more than five years, he was hospitalized for more than three years, and her mother needed 24-hour personal care. spent in the ward."
In addition, Yuen can't eat, drink, play, go to school, and participate in activities like normal children. "Instead, she has a lot of treatment, training, blood drawing, and making beans. She suffers from various discomforts and pains. As a parent, she is full of guilt. and regret!"
Yuen's parents said that her happiest moment was when she was with her mother, in her arms, listening to her mother sing nursery rhymes and telling stories, "Although she lost most of her consciousness, she always smiled and greeted people with a smile, even when she was suffering. The pain in the body still restores the smile quickly, I believe her sweet and bright smile can bring encouragement and comfort to many people.”
Xiao Yuen's heartbeat and breathing stopped for a while after undergoing liver and enterotomy surgery at Queen Mary Hospital at the age of one, and her family questioned the hospital's mistake.
Queen Mary Hospital released an investigation report in 2018, arguing that individual medical staff are inexperienced in identifying patient conditions in a timely manner, and they are habitual and overly reliant on equipment to monitor patient conditions.
Yuen’s father pointed out that he received many letters from the public to the hospital to encourage Yuen, and thanked all the citizens who had sent letters.
(Photo by Lu Yiming)
Father's Day | Xiaoyuen Father and Daughter Hospital don't ask for gifts and celebrations during the holiday: I just wish she could live Father's Day | Xiaoyuen's father gives unconditionally and fills his eternal regret with love: I have never heard a father's 5-year-old Xiaoyuen's liver deteriorates The mother may die suddenly, take care and pray for her daughter to survive Life Fighter｜Xiao Yuen has liver failure or died in a short period of time, and the family is asking for gas: racing against time with bile duct occlusion Xiao Yuen successfully received gastrostomy surgery on her 3rd birthday Liver replacement needs Xiao Yuen, brain awareness is improving, eyesight is improving
