On video: Lila Sagol events (Editor: Gilad Man Mannheim)
When he was 31 years old, Arthur Lazarev, a former Givat patrol fighter, did not have much time left to live, after contracting Huntington's disease - a rare and incurable disease that would turn him into a nursing home in a few years.
Arthur, who previously announced that he intends to end his life on his own initiative, presented a unique, funny, sad and moving stand-up show at an event of the "Shavim" website in collaboration with the Lottery at the Yemen Field base of the Givati Brigade, a day before the "Lila Segol" events, which were held this year on December 1 After an entire country was swept away last year.
"In my show you see everything," says Arthur, who is leading a fight for a drug that can ease his suffering and about 500 other Huntington's patients in Israel.
"There is no such thing as black humor and everything is fine as far as I'm concerned."
"There is no drug that cures the disease, but there is a drug that alleviates the symptoms," says Arthur's friend.
"Arthur is trying to raise awareness of the disease, because the medicine is very expensive. We would like them to put it in the medicine basket and ease the patients' symptoms."
During the event, there was even a performance by the band "Gedolim in uniform" - the military volunteer band made up of soldiers with disabilities.
Purple Night events
as part of the International Day for the Rights of People with Disabilities, the Lottery, the local and regional government, and the "Shavim" website continue the tradition, for the third year, and on December 1, together they illuminated the country with purple as part of the "Purple Night" events, this of course alongside Content activities on a wide variety of platforms.
This year the Ministry of Education also joins the project and in the schools the teachers will deliver lesson plans dealing with the subject of integration and inclusion of difference.
In order to connect the residents of the local authorities throughout the country to the project, this year, for the first time, purple lighting chains will be distributed to approximately 100 thousand households, so that they can light up their homes, express sympathy and support the advancement of the social goal.
These will join well-known buildings such as the President's House in Jerusalem, the String Bridge in the capital, the Reading Electric Station in Tel Aviv, the Bhima Theater building and many other buildings that will be lit purple with the aim of painting the country in honor of the 1.5 million children and adults with disabilities in Israel.
CPA Avigdor Itzhaki, Chairman of the Lottery Factory: "The Lottery Factory has inscribed on its banner the issue of integration, support and promotion of people with disabilities in Israel and placed it as one of the five core areas of the organization in the social arena. After the last two years we have been able to reach this important social message to millions of people and burned it into the public consciousness, we implemented, together with our partners in the local and regional government, dozens of projects, some of which are already operating and some of which will be launched this year, all of which aim to provide equal opportunity to people with disabilities in the Israeli labor market, and to integrate them more deeply into society and the community. Ours on this day is clear: we are with you all the way and will continue to invest many resources and efforts for the sake of improving the quality of your life and for full equality of opportunity in all areas of life."
The Lottery Council for Culture and Art supports and assists creators and artists and encourages artistic creation that is accessible to different and diverse audiences and groups.
The Lottery Council's program for culture and art is dynamic and changing, and allows a wide variety of artists to express themselves and grow in the fields of:
performing arts, art and design, literature, cinema, television and new media, and art in the community
. The Lottery works for the advancement of culture and art in Israel.
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