"Always thin shit": Upper Bavarian model is open about her ugly illness
Created: 01/03/2023 08:43
By: Dominik Stallein
Regina Huber suffers from the incurable Crohn's disease.
The model from Wolfratshausen in Upper Bavaria is open about her illness on Instagram.
That was not always so.
Wolfratshausen – When Regina Huber is asked how she is doing, she rarely answers honestly.
"Nobody wants to hear the truth," she says.
"It's okay" or "everything's fine", that's what people get as an answer.
As she often really is, she wears it on a subtle gold chain around her neck.
The word "Daschissn" is written on it.
She designed the piece of jewelery herself.
On the one hand, because she finds it funny and because it suits her nature as a "Boarian Grantlhuaberin".
And a little, because it would often be the honest answer to the question of how they are feeling.
Regina Huber suffers from the incurable Crohn's disease.
The model from Wolfratshausen in Upper Bavaria is open about her illness on Instagram.
That was not always so.
© Hiss/Instagram
Regina Huber is 31, a proud Bavarian, a model - and terminally ill.
She found out ten years ago.
Since then she has had six surgeries, twice the treatment saved her life.
She named her illness Nelson.
That sounds better and it's easier to say than Crohn's disease (see box).
Nelson is quite annoying, the nickname could almost hide that.
Wolfratshausen: Model Regina Huber suffers from Crohn's disease
Regina Huber shows her scars openly on her Instagram profile.
© Sabine Hermsdorf-Hiss
At the age of 16, the woman from Wolfratshausen realized that something was wrong.
Stomach pains plagued her - longer and more intense than she had ever experienced before.
For five years she suffered from an illness that no one recognized.
Until the pain got so bad that she was in the hospital for two weeks.
The first diagnosis: norovirus.
The doctors were wrong about that.
Because her situation simply would not improve, she was examined again.
A CT showed for the first time what the young girl was suffering from.
Her appendix had burst, her small intestine was severely inflamed, and stool was floating freely in her stomach.
The diagnosis of Crohn's disease came almost too late, and an emergency operation saved Wolfratshauser's life.
The chronic disease Crohn's disease
Crohn's disease is chronic intestinal inflammation.
The disease progresses in phases and is not yet curable.
The most common symptoms include severe abdominal cramps, diarrhea and vomiting - and this for weeks.
Most patients develop Crohn's disease between the ages of 15 and 35.
It is estimated that around two in 1,000 Germans suffer from the disease.
The disease can affect the entire digestive tract from the mouth to the anus.
It can cause ulcers and narrowing of the intestines and weaken other organs, especially the liver or gallbladder.
It is assumed that Crohn's disease is an autoimmune disease - in other words: the body works against its own immune system.
Crohn's disease is one of the chronic inflammatory bowel diseases, or IBD for short.
The disease is named after the American physician Burrill Bernard Crohn, who described it in 1932.
Since that day more than ten years ago, Huber has had five more surgeries.
At the moment she is doing quite well, Nelson is calm.
"I enjoy these phases because I know that there will be times again when I'll be stripped like a white sausage for weeks." She wasn't always as open as she is today.
"It took a while before I could really talk about it." Huber now does it - in simple, preferably Bavarian images.
She wants people to understand her.
She does not speak of regular diarrhea, but of "constant thin shit".
Maybe some people take offense at that.
"But I don't care."
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Model from Wolfratshausen encourages sick people on Instagram
In general, the 31-year-old doesn't give a damn.
On the online platform Instagram, she posts revealing model photos alongside oppressive clinic shots.
She has the blacksmith von Kochel tattooed on her left thigh and the robber Kneissl on her right – highly controversial figures.
Soon she wants to immortalize a Wolpertinger on her upper arm.
The part-time model consistently rejects requests from photographers who want to retouch their scars.
And when she talks about modeling, her tattoos and funny videos on Instagram, it sounds like her Crohn's disease doesn't really matter in everyday life either.
That's not true.
She visits doctors three times a week and a psychologist once and collects medical reports on the way like soccer fans collect Panini stickers.
She works 15 hours a week as an accountant.
More is not possible.
"I'm not resilient," she says.
And actually she already has a full-time job with her trips to the doctor.
It's the only one she'll do in her life.
"I know that I can never work full-time," says the 31-year-old.
She notices this after just a few hours in the office. "It feels like three days on the construction site."
Regina Huber is a passionate model, for example here at the Loisach in Wofratshausen.
She deals with her surgical scars with self-confidence.
The 31-year-old suffers from Crohn's disease.
© Sabine Hermsdorf-Hiss
In addition to her job and her modeling passion, Huber is committed to helping other sick people.
The woman from Wolfratshausen is an ambassador for Lila Hoffnung, an initiative that provides information about colon cancer and chronic bowel diseases and supports the sick.
Huber would have wished for hope a few years ago when she was in the clinic and didn't know what to do next.
And someone who doesn't hide behind diagnoses, but tells you how it is.
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