Arnold Munnich and Bernard Gilly: “There is urgency about rare diseases”

On Tuesday, February 28, the International Day Against Rare Diseases, Professor Arnold Munnich, geneticist, co-founder of the Imagine Institute, and Bernard Gilly, scientist, major figure in the biotech sector, founder of GenSight, plead for more bridges between the world of research and that of companies to promote the discovery of new treatments.

Rare diseases affect three million people in France.

LE FIGARO.

- Why did you decide to speak together on this subject?

Arnold MUNICH.

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There is an emergency!

More than 300 million people worldwide are affected by one of the 7000 rare diseases identified to date.

A disease is considered rare when it affects less than one person in 2000. 80% of these diseases are of genetic origin, and 7 out of 10 begin in childhood.

Certain diseases are now better known in France, such as Duchenne muscular dystrophy thanks to the Téléthon.

Bernard Gilly.

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