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The moving testimony of Marina Carrère d'Encausse on the fight of her companion with Charcot's disease

2023-09-06T07:41:54.964Z

Highlights: Marina Carrère d'Encausse is the guest of the "7/10" on France Inter this Tuesday, September 5, 2023. She spoke at length about the daily life of her spouse, Antoine, suffering from Charcot's disease, and the approach of death, inevitable. France 5 announces the broadcast, on September 26, of End of life: so that you have the choice, embodied by the journalist, long favorable to an evolution of the Leonetti law of 2005.


Guest of the "7/10" on France Inter this Tuesday, September 5, 2023, the doctor and journalist spoke at length about the disease from which her spouse suffers.


There are fights where even the most advanced medicine fails. Marina Carrère d'Encausse knows it and says it. The doctor and journalist, at the presentation of the "Health Magazine" from Wednesday to Friday on France 5, testified this Tuesday, September 5, 2023, in "The great interview" of the "7/10" of France Inter, the daily life of her spouse, Antoine, suffering from Charcot's disease, and the approach of death, inevitable.

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Why these statements, there, now? Because France 5 announces the broadcast, on September 26, of End of life: so that you have the choice, a documentary at once scientific, committed and testimonial, embodied by the journalist, long favorable to an evolution of the Leonetti law of 2005 on the regulation of the end of life. We know how sensitive the issue of euthanasia in France is.

Read alsoEnd of life: "The Claeys-Leonetti law is not sufficiently known or applied," according to Delfraissy

"It is first of all a personal reflection, which I have had for a long time on choices that I find absolutely essential and with a French law that does not seem sufficient to me," she explained at the microphone of Léa Salamé and Nicolas Demorand. A law that is so inadequate as to deliberately break it? "I assume", she answers at the microphone, and adds that if her spouse "had to go to Belgium to have the right to die as he wishes", she would be ready, in full conscience, to help him in France by putting herself outlawed.

"In any case, death is at the end"

Marina Carrère d'Encausse

"When I was a young doctor, I considered that doctors were there to relieve pain, always, but not with the idea that we could do this ultimate gesture," she recalls. Before adding: "When I hear palliative care doctors in France explain that when you do deep and continuous sedation, the goal is to relieve the patient, while death is at the end within four or five days, and when you do euthanasia, you kill the patient, I do not see this nuance."

"In any case," she concludes, "death is at the end." End of life: for you to have the choice will be broadcast just one year after the beginning of the work of the citizens' convention on the end of life. The question of the evolution of the framework for end-of-life support is on the parliamentary agenda for the coming weeks. Too involved, Marina Carrère d'Encausse will not animate the debate following its broadcast. It will be orchestrated by journalist Mohamed Bouhafsi.

Charcot's disease, also known as amyotrophic lateral sclerosis, is a progressive neurodegenerative disease that affects nerves and muscles and eventually paralyzes the entire body. Rare but incurable, it affects 2 people out of 100,000 each year.

Source: lefigaro

All news articles on 2023-09-06

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