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Golf: Joaquin Neimann gets involved in giving newborn baby the most expensive treatment in the world


THE SPORT SCAN - The Chilean golfer took action to save his little cousin, who was struck a few days after her birth from a rare disease, proximal spinal muscular atrophy.

One of the most promising golfer of his generation, Joaquin Neiman has largely contributed to saving the life of a member of his family suffering from a rare disease after a tremendous mobilization on social networks.

Last October, like the whole family, the former world n ° 1 amateur celebrated the birth of a cousin, Rafita.

But the joy was short-lived when doctors diagnosed a rare inherited disease after a few days, proximal spinal atrophy.

This disease is characterized by degeneration of nerve cells from birth causing muscle wasting and almost total paralysis of the infant.

The patient is immobile and may even be unable to suck and swallow.

Tengo mucho por lo que estar agradecido pero en especial por ver cómo entre todos logramos llegar al 75% de nuestra meta para salvar la vida de Rafita.

Estamos muy cerca y de nuevo solo me quedan palabras de agradecimiento!

# / ydadv7q99R

- joaconiemann (@joaconiemann) December 16, 2020

Zolgensma, the most expensive drug in the world

Chile star, the 22-year-old who already won the prestigious PGA Tour and recently made his way into the top 30 in the world, accompanied a campaign launched by Rafina's father with the aim of raising funds with the hope of being able to finance a treatment.

This one exists but it is extremely expensive: 2.1 million dollars.

This gene therapy, Zolgensma, is even considered to be the most expensive drug in the world.

“Rafita started to get a lot of attention on social media in Chile and they raised a lot of money, but it still wasn't enough, so I decided to start donating money during tournaments golf, ”said the generous golfer in an interview with



Neimann therefore offered to contribute $ 5,000 to the pot every time he birdie on the greens and $ 10,000 when he signed an eagle.

To these donations was added a check for 125,450 dollars in November after his victory in a tournament, the RSM Classic.

His involvement snowballed and other golfers on the pro tour also contributed to the momentum, such as Justin Thomas and Rickie Fowler.

“She can now create proteins to build her own muscles.

She is much better and can move.

I hope this will continue ”

Everyone's efforts were rewarded and the threshold of $ 2.1 million was reached.

Rafina has thus benefited from the treatment and appears to be on the road to recovery.

“With therapy, she can now create proteins to build her own muscles.

She is much better and can move.

I hope it will continue, ”said the player relieved and in the form of his life.

Author of an excellent start to the season which allowed him to become the 28th player in the world, Joaquin Neimann now dreams of bringing back to Chile the gold medal at the Tokyo Olympics.

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Source: lefigaro

All sports articles on 2021-03-31

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