Xlh rickets, psychological support from Aismee also online - Medicine.com. Free psychological support, even remotely, for patients suffering from hereditary metabolic diseases, in particular hypophosphatemic rickets (XLH) It is the Aurora Project, wanted by Aismme APS, to help families struggling with a rare pathology, with pediatric onset.
Those affected - it is estimated that it affects one newborn every 60 thousand - suffer from severe pain, have difficulty moving and very often have to resort to surgery.