Olivia Farnsworth's story seems more like science fiction than reality.
Some time ago, with just seven years old, this British girl became sadly famous throughout the world for her very strange condition that makes
her not feel pain, hunger or sleep.
Olivia lacks
a part of chromosome 6
, a genetic alteration unique in the world at the moment that has earned her the nickname of
"bionic girl".
Olivia Farsworth rose to fame in her native Huddersfield, a town located between Manchester and Leeds, when
she was hit and dragged more than 20 meters
by a car.
Far from crying or complaining of pain, she got up and asked her family, who were looking at her in astonishment,
"What's wrong?"
The girl had a tire mark on her chest from the hit-and-run and
suffered burns to her foot and hip.
The girl, who is now around 13 years old, suffers from a strange condition.
As the doctors explained, Olivia was saved by not tensing herself at the moment of impact.
She stayed relaxed and that prevented fractures.
The major histocompatibility complex is found on chromosome 6 and is related to
the body's immune response.
Complete monosomy 6 - the total loss of said chromosome - is incompatible with human life, so Olivia must be missing a part and
it is very difficult to determine its exact function
.
The girl, who is now around 13 years old, suffers from a strange condition.
This chromosome
contains about 100 genes
, each with a different task.
A girl different from the rest
"The chromosomal disorder
makes him immune to pain
and he has no sense of danger," his mother Niki Trepak told the English
Daily Mail
.
Although not feeling pain is not the only problem that this girl has in her daily life.
Her mother explains that she is not usually hungry and that
she can go up to 72 hours without sleep
, so they are forced to give her sleeping pills to help her fall asleep.
The girl, who is now around 13 years old, suffers from a strange condition.
The mother recounted that Olivia lived on butter sandwiches for about a year.
"
She's not hungry
, so I can't threaten her like other kids by telling her that if she doesn't eat from her, you won't have this because she doesn't mind."
The incident with the car is not the only shock that Olivia Farsworth's family suffered.
A few years ago, when she was going to kindergarten,
she suffered a fall and broke her lip.
The girl didn't even cry despite her
mouth full of blood
.
And after operating on her lip, the doctor who treated her realized that she did not feel any pain, as if she were anesthetized.
The girl, who is now around 13 years old, suffers from a strange condition.
Already as a baby he was not like the rest of his brothers.
“Olivia, she never cried, at nine months
she stopped sleeping normally
and her hair did not grow properly until she was four years old.
She, despite everything, is a very happy girl, ”Trepak narrated.
At the moment
there is no other known case in the world
of a person with the same chromosomal disorder, which makes Olivia unique.
“There are many families going through
daily struggles without the rest of the world
having ever heard of these upheavals.
More money is needed dedicated to research so that there are more answers, ”said the mother on social networks.
For this reason, he has launched a campaign to raise funds in Youcaring.
The donations will help the University Medical Center of Groningen (Holland) to investigate the case of her daughter and others related to chromosomal disorders.
Source: La Vanguardia and Daily Mail
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