Javier Firpo
04/01/2021 12:29 PM
Clarín.com
Society
Updated 04/01/2021 12:31 PM
Sebastián says that he dreams every day of getting rid of that weight that disfigures his pretty face.
He dreams of not having that "number five ball" that is stuck like a tick to his right cheek.
He says that "that thing" does not want to go from there, that "
that ball, with what I love football, is taking away all my strength
."
For eight years his face, he says, has been invaded "by an alien."
He also says that he cannot imagine himself without "that mazacote" that
strengthened him, that changed his personality
and that he has been there for a third of his life.
Sebastian really needs to say ...
Fana de River, Sebastián Amurin D'Amico is 25 years old, he lives with his mother María de las Mercedes and his brother Rodrigo in Moreno.
She began to be a
celebrity
of social networks by telling, raw, with hairs and signs,
the drama he is experiencing and his stoicism to face it.
Little by little, it began to have thousands of followers, today it exceeds five digits.
"People see me as a reference, as someone young who struggles and
every day hundreds of messages come to me begging me not to give myself up
."
Sebas suffers from an
embryonic sarcoma
in the right maxilla, a cancer that only affects 0.5% of patients with this type of disease.
Since 2014, he has been doing everything in his power, consulting doctors from hospitals in the province of Buenos Aires and the Federal Capital, and also following some suggestions from his supportive followers, who find out, consult and
even write to the highest authorities begging Sebastian for help
.
Sebastián found an echo and a repercussion in the networks: "The truth is that I cannot believe the expressions of solidarity that I receive from the people."
Some even from abroad even
tell him that they pay him the trip to study in Spain or the United States
.
There are also donations of money, including foreign currency for remedies and possible treatment.
"I am moved by what happens with people, I feel loved, content and it serves me as a therapy,
I need to channel this anguish somewhere
. There are days when I do not want to write or record a video, but I feel obliged by those thousands who so they are worried about me. "
"For me you
are a hero, a resilient
. Let your mind relax, give yourself a break," Vicky suggests.
"Don't let depression drag you down, while
there is life, there is hope,
" Cary reminds him.
"You are not alone, there are thousands here and
if you need psychological help you can contact yourself,
" they offer him from a psycho-oncology center.
"I'm in a similar situation and when you think 'that's it',
help
appears
from the most unexpected place
," Angeles lets him know.
And so the messages multiply by the hundreds.
Cancer surrounded Sebastian
.
First it was his father Miguel Angel, who died eight years ago.
"The old man did not even have a chance to fight her, he was killed in a few days because during his hospitalization he caught an in-hospital virus."
His aunt, his mother's sister, passed away a year and a half ago from breast cancer.
"Luckily Rodrigo, my brother, fought and is recovered from his testicular cancer, and now he takes care of me, he is close, like my old woman."
His anger, anger and helplessness show,
"Why so much punishment?", He mutters.
A little getaway.
Together with his mother and brother, in February: they went on vacation to the beach for a few days,
These are very dizzying days for Sebastián, who was hospitalized twice in a week because the tumor was infected.
"They did the cures, an intravenous treatment and they sent me home, but the prognosis is screwed ...
I'm screwed, the question is how long will my body resist
. They did a CT scan and the tumor that always seems to be the same size, it became huge inside and my spine and base of the skull are compromised ".
What a few months ago could be the possibility of an eventual salvation, a "hopeful surgery", is seen today as
a door that would accelerate the worst of the outcomes
: "According to what the doctors from the Santojanni hospitals and Clinicas told me, today It is not known what the benefit of the operation would be, but the bad things, which are many: I probably cannot speak anymore, nor eat on my own ... I will be missing half my face and I may live with a tracheostomy for life. "
"The main problem with large tumors in the face and neck
is the risk of the nerves that are there
and in an eventual operation the diaphragm, speech, swallowing are put into play for life, which could produce serious psychological disorders. All of this is posed
to the patient, who is the one who must accept these sequelae or not
. And although the tumor touches the spine, the chances of being paralyzed is zero ",
Matías Norte, an oncological surgeon
, explains to
Clarín
from the Hospital de Clínicas.
The doctor, a specialist in the neck and head, affirms that "as an oncological surgeon one considers all the possibilities that may arise in the operation, such as the risks -also- of cutting the carotid to cure the disease. If the cure of the tumor is guaranteed? "The idea is not to go to surgery if we don't have a small window of hope.
If we can't talk about a cure, it doesn't make sense to go through such sequelae
. But it is still a difficult and personal decision."
Sebastian clears several times, his voice cracking in his talk.
"It is a permanent setback and I must make a decision,
a decision that weighs on me, that has me exhausted, almost expired. Is it worth the operation?
The tumor has grown a lot in recent months, which surprised even the doctors themselves. Does it make sense to undergo a 24-hour carnage, with serious chances of not waking up, or of being crippled for life? Or continue like this, having autonomy to move, chew, think and that is until God wants and endures the body ? "
"I am a fighter, I have been one for eight years, I am not going to let myself be defeated, but I do not receive any encouraging news," Sebastian shares.
The removal of the tumor, undoubtedly, will also cause the extraction of healthy cells and bone from his right side, "which will prevent me from placing a prosthesis because there is no way for something to support it. That is my scenario, the truth is that it is not I want to be dramatic,
I am a fighter and I am not going to let myself be defeated, but I do not receive any encouraging news
. The only thing that drives me to continue fighting it is my family and the memory of my old man, who as I said, did not have the possibility that I I have, "continues Sebastian.
Paradoxically, the death of his father, Miguel Angel, with whom he had a close relationship, incubated Sebastian's illness.
"I do not want to disappoint the old man,
he knows that I am leaving everything but I am not giving more, the stress and exhaustion
from not finding a minimum light of hope is devastating. I am giving everything, I tried almost everything, except with the non-traditional medicine, the alternative, that can work but I don't think that for paintings like mine ".
Sebastian Amurín with his older brother, Rodrigo, who recovered from testicular cancer.
He says that these are not the best days, that emotionally he is "sunk", locked in his room, practically does not go out, watches a lot of football and is distracted by social networks.
"I worked in a remises office, then I started to go out to the street to take passengers, until they shocked me badly, they put a prickly pear on me, they worked me all over and shit came to me and I said enough,
cancer does not kill me, I'm going to kill a jet
. I was traumatized, I tried to go back but I couldn't ... It was good for me to work, earn some handles and think about something else, but the bocho carbura, does not relax ".
He wants to think about the future, he wants to dream about an announcer, he quotes Badía, "my old man's idol", he longs for a night program on some FM radio, "I dream that the operation gave me, the one that today just reveals me, because no longer It seems to be no longer the solution, although there is a slim chance with a carotid occlusion study ... But I no longer know where to run, where to find a quiet space. I know that it is a hinge moment, as well as sometimes I I feel demolished and without strength,
I think that God has to throw me a rope ... only one
".
Sebastian cries, he cries in silence, as he does in many moments of every day.
Added to the indisputable seriousness of his clinical situation, to the uncertainty that at times suffocates him, there is an
impasse
in a very important relationship, which propped up, contained and cared for him: "I have a logical instability, many times I see everything black, other few
I distinguish a luminous point there far away
".
ACE
Look also
"I wish you strength but you have them all, you are a hottie": the story of the young man who has had aggressive cancer on his face for 6 years
"I always looked for the possibility of living a little longer", how is Sebastián D'Amico's fight against cancer in the face